My plan is about sharing valuable information so the people in my life can develop a clear understan

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Asked by cutebibs91

My plan is about sharing valuable information so the people in my life can develop a clear understanding of who I am.  It also includes:
• My like / dislikes
• My support needs
• How I want my support provided to me
My plan is about my future and sharing my goals and aspirations with the people who help support me.  It is important that the people who support me are committed to helping me achieve my goals and aspirations so I can live the life I desire.  This will improve my quality of life.

It is also very important that the significant people in my life help me to update my plan regularly so I continue to receive the support I need to have a good quality of life now, and with a view to making life even better in the future.

My plan has been developed on the following principles:
• Communicating and acting in an open and honest manner
• Treating everybody involved with respect and consideration
• Providing the information needed to develop, implement and maintain my plan
• Involve everyone in the decisions that may affect my plan
• Sharing responsibility for the decisions that are made
• Preserving privacy and confidentiality
• Gaining permission before providing personal information to others
• Keeping personal information secure

 

My History
I was a premature baby and spent my first 10 weeks in hospital.  I was diagnosed with cerebral palsy at 18 months old and spent the first four years of my life in continuous therapy.  I developed epilepsy when I was four years old and had my last seizure at eight years old.

I went to Caboolture Special School for pre-school.  From Grade 1, I went full-time to mainstream school in Caboolture.  From Grade 3 I split 3 days at Caboolture Special School and 3 days at Caboolture mainstream.

I live at home with my mum and my dad lives in Gympie.

I have only ever attended Caboolture Neighbourhood Centre since leaving school and I am getting bored with the activities.

I have ongoing physical, intellectual and mental health issues, although I don’t see myself as a person with a disability.

I was diagnosed with Type II Diabetes around two years ago, which is managed with a healthy diet.  I also have regular blood tests to check my blood sugar levels.

I am very social, have a great personality and sense of humour.  I also have a very good memory!  I love music and going to the club.

How I communicate
I communicate verbally and have a large vocabulary.  I am good at telling stories, so sometimes you may need to confirm what I say.

I can make choices if you ask and prompt me.  You must be specific with the options you give.

Sometimes I may need a reminder if my language is a bit colourful.  Mum uses ‘No Bombs’ allowed.  This has increased lately, and I have become more verbally aggressive.  This is due to medication changes which I am currently going through.

I can sometimes be aggressive towards my mother and my support staff, so please be mindful.

Community Life
I love going to see entertainment and am a member of several clubs, including Caboolture RSL and Caboolture Sports Club.  This has been reduced a bit lately as I’ve been finding it difficult to bring down my excitement levels which can cause behaviours at home and out in the community.

I love selling raffle tickets for my workplace which I have done in the past.

A lot of people remember me within my community.  I enjoy maintaining these links to community and enjoy feeling part of it.

I especially enjoy train rides and meeting all the different guards.

I renewed my membership at Australia Zoo this year, so I am looking forward to spending some more time there.

A friend of mine Ed plays live music locally, and I often watch him play.  I do get quite excited and sing as loud as I can, which can annoy Ed and some customers.

I also enjoy catching up and keeping in touch with my past support friends and families.

Who is important to me
The most important people in my life are my mum, dad, nan, extended family, support workers – past and present.

I live with Mum in Caboolture and Dad lives in Gympie.  I skype with Dad twice a week with the help from my support staff.

Dad comes down and visits every couple of months.  I really enjoy fishing and other activities with my dad when we get the chance to do it.  Continuing and strengthening my relationship with my dad is very important to me.

I have an uncle Sam who lives up the coast, he works within the music industry, I have other family members but they live too far away.

My best friend lives in Sydney, she is very special to me, I haven’t seen her in 10 years as she can’t travel up here.  I would really love to see her again and this is one of my goals.  We would both love that.  I talk to her on the phone when I can.

I also really enjoy visiting my neighbours across the road, Sam and Sue and seeing what Sam is working on.

Things you really need to know
The most important thing to remember when supporting me is consistency.

I need specific handling due to my skeletal problems and it is really important that everyone supporting me follows my profile information.  Positioning in my chair and shower chair is crucial for maintaining my health, and at times I may need a stretch or repositioning to keep me comfortable.  I can bridge to assist with this, as it is vital for me to be able to do to maintain my independence.

I need constant supervision when I am driving my electric wheelchair, as I have no sense of danger or road sense, and limited visibility of the ground due to my tray (which is essential to be on my chair when I am mobile to anchor my hand).  My right shoulder is permanently dislocated and my left shoulder is prone to dislocating.

I can get upset if mum is talking with my support staff and not me.

I enjoy the company and support of both males and females.

Another important thing to remember about me is that my behaviour can be easily influenced by my environment.  I need consistency, a positive attitude and for support staff to be aware of my surroundings and what I may be exposed to that can have a negative impact on my demeanor.

Recently I have been trialing new medication in an attempt to become less irritable.  This has been a lengthy process without any positive benefits so far.  I’m continuing to see the necessary specialists to find medication that will help me.

I need consistency in my diet to control my type 2 diabetes.  I do not take medication for my diabetes as it is purely controlled by my diet.  Preventative health is crucial to me in this area of diet.

Manual Handling is also crucial for me. I need to be hoisted for all transfers, and require correct manual handling to maintain my skeletal health.

I have ongoing mental health issues which require regular monitoring and check-ups and I need carers to be consistent with my behaviour management in this area.

Good dental hygiene is important to me.  I need full support to brush my teeth and floss when necessary, as food can tend to get stuck in the gaps in my teeth.

I need full support with my ongoing health requirements – including oral care, mental and emotional wellbeing, physiotherapy and occupational therapy, vision (due to diabetes) and dietary requirements.  I also need assistance to manage any medical appointments or reviews relating to any of my ongoing health issues.

I would love to explore swimming again, which I have not done for years, I can use this as a therapy to assist me with my ongoing health issues.  Mum is still researching and looking into this.  Swimming would assist me to maintain my weight, muscular strength, flexibility and help me to relax.  I would need to ensure I have all the right equipment and support to achieve this goal.  My mum has asked at the local Caboolture pool which has great therapy facilities.  Next time I see my OT mum is going to ask about positive flotation options and assessment requirements.

1. How could you support Sarah with her goal to visit her best friend in Sydney?
2. Sarah has planned a trip to Australia Zoo and you are her support worker for the day.  Knowing that Sarah can have behaviour outbursts, what could you do to support Sarah to reduce any potential outbursts?

3. Sarah has let everyone know that she is bored with the activities that she is completing at the Caboolture Neighbourhood Centre. Research other networks and associations that may be of interest to Sarah. 
 

• Following ATS Cares grievance process if concerns arise
 

SCIENCE
HEALTH SCIENCE
NURSING
COMMUNITY SERVICES CHCCCS006

 

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