1. perspectives on caring for children and

1. perspectives on caring for children and their families with chronic or complex or terminal illnesses. Include: a. problem scope b. Trends in care: 1) Family-centered care 2) Establishing therapeutic relationships 3) The role of culture in family-centered care 4) Shared decision making 5) Normalization 2. Describe the impact on the family of a child with a chronic illness or complex condition. Include: a. Impact of the child’s chronic condition on parents and siblings b. Coping with continuous stress and periodic crises 3. Assisting family members in managing their feelings. a) Denial and “shock” b) Adjustment c) Reintegration and recognition 4. Describe the developmental effects on the child with chronic conditions or disabilities, including supportive interventions. a) Infant b) Trotter c) Preschool d) School e) Adolescent 5. Briefly describe nursing management with the family of the child with chronic or complex conditions. Include: a. Coping or survival mechanisms (coping) b. Estimate of strengths and adjustment. c. Establishment of support systems at the time of diagnosis. d. Family support with coping methods and. Educate about the disorder and general health care. F. Promote the normal development of the child. g. set realistic goals 6. Develop a care plan for the child and her family with complex disease conditions using two NANDA domains. Include one (1) nursing diagnosis for the child and one (1) for the family. Develop the plan in a table as it appears in the ENL 402 manual. 7. Describe the child’s reactions and conceptualizations toward death during different stages of growth and development. a. toddler and trotter b. Preschool c. School d. Teen 8. Discuss nursing care of the child and family at the end of life. a. Management of pain and suffering b. Education and support for parents and siblings c. care at the time of death d. post-death care and. Family care for the unexpected death of a child 9. Develop a hospice care plan for the terminally ill or dying child and her family, using two NANDA domains. Include one (1) nursing diagnosis for the child and one (1) for the family. Develop the plan in the table format as shown in the ENL 402 manual. 10. Describe the nursing professional’s reactions to the terminally ill child a. Denial b. courage and depression c. Fault d. Ambivalence 11. Strategies and mechanisms to deal with the stress of the nursing professional regarding terminal conditions and the death of the child. Referencias: Hockenberry, M.; Wilson, D. & Rodger’s, C. (2019). Wong’s nursing care of infants and children. (11th ed.). Elsevier. Cap.19. Hockenberry, M. & Wilson, D. (2017). Wong’s essential of pediatric nursing. (10 th ed.). Elsevier. SCIENCE HEALTH SCIENCE NURSING NURSING BS ENF 402

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