1. Research and discuss links between enrolled nursing practice and

Tanisha has a swallowing disorder called Oral Motor Dysphagia. This means she can be at risk of choking or even dying any time she eats or drinks. Up until September 2018 she had NDIS funding for speech therapy to help with her condition, which has now been taken away with no explanation. Take action at www.nswcid.org.au/HardtoSwallow TRANSCRIPT Bronwyn Flemming: Tanisha’s got a rare genetic disorder. And as far as we know she’s one of very few, if not the only one like it in the world. She’s got a duplication of chromosome 5q and a deletion of 18p. She has problems with her swallowing and she chokes most nights. Mainly of a night when she’s tired, but she can choke even at breakfast time or lunch, it doesn’t matter. It’s a thing called Oral Motor Dysphagia, which is on top of her disorder. She’s a SWAN. So she’s like a Syndrome Without A Name. Tanisha loves Harley to death. He just makes her laugh, he makes her smile. He is a very huge part of her life. I don’t know if she would be where she is now without Harley. He’s had to do so much for her. And so much to help me too. I often feel guilty, being a carer. I’m a single mum, so I’m caring for both of them. And a lot of my time is taken up with Tanisha. And Harley has to help a lot of the time. He’s had to hit her on the back when she’s choking, while I’m at the front trying to dislodge whatever it is that is stopping her from breathing. He jumps out of bed just the same as I do in the middle of the night to help her. He’ll say that he doesn’t like his sister very much, but I know he does, and I know he thinks the world of her, and he would do anything to help her. Harley Flemming: She’s a kind, caring, and annoying person. I usually don’t really go to sleep that much because of her coughing, and so it does get pretty annoying. It is really hard. I just see Mum just running straight into the room, and then so I’m like ‘What’s happening?’ And then I always just go in. And I was like ‘Oh, she’s coughing again.’ So yeah, it’s pretty usual. Simone Fitzgerald: With Oral Motor planning problems and disability issues, it can be a really difficult thing for a lot of our clients. We find that they’re at a really high risk of choking every day. And for some people that’s actually a risk of death. So it’s really important that we make sure that we help families and help our clients these difficulties so that they can eat and enjoy food and sustain proper diets like anyone should be able to. And safely. Bronwyn Flemming: She has very poor fine and gross motor skills. [She] finds it hard to do everyday things, like even make a sandwich. Even if she has a drink of water she can choke. But the speech therapy was helping with all of that. Basically we’ve only had, the NDIS, we’ve only had one review. So we had our initial package, and this is our first review. So in the initial package we had the therapies there. We had speech therapy. We had OT. And now all of a sudden they’ve taken all of her speech off her. And they’ve taken nearly all of her OT of her. Only 8 hours of OT over 12 months, opposed to an hour a week. And the same basically for the speech, only we don’t have any speech at all. They’ve just taken it. And they haven’t given us a reason as to why they’ve taken it. Pip Cullen: NDIS has come back recently and said that they will not fund therapist support for meal times, and mealtime management plans, and swallowing difficulties because that’s a health issue. However, for us here in Port Macquarie, that’s always been covered under the disability sector. So disability services have always covered swallowing and mealtime plans. There isn’t staff locally that are able to provide that support within our health service. Bronwyn Flemming: Basically, she is my hero. Because she will have a go at anything and everything and she will try her hardest. I couldn’t be more proud of her.1. Discuss the challenges that Tanisha and her mother experienced while seeking support in the community. Relate their experience to literature about health inequities for people with intellectual disability. An exceptional discussion of the challenges that Tanisha and her mother experienced. Information is clearly related to literature about health inequities for people with intellectual disability and demonstrates a higher level of understanding. Information is consistently supported by contemporary relevant high quality acade. Discuss the key elements of person-centred care and outline the benefits for people with chronic conditions or persons with a disability. Support your discussion with evidence-based research literature. Relate this information to Tanisha and her mother. An exceptional discussion of the key elements of person-centred care and the benefits for people with chronic conditions or persons with a disability. Information is consistently related to Tanisha and her mother and demonstrates a higher level of understanding. Information is consistently supported by contemporary relevant evidenced based research literature.3. Describe strategies for health professionals that promote shared decision making in collaboration with carers, families, and individuals. Relate these strategies to Tanisha and her mother. An exceptional description of the strategies for health professionals to promote shared decision-making in collaboration with carers, families, and individuals. Strategies are related to Tanisha and her mother and demonstrate a higher level of understanding. Information is consistently supported by contemporary relevant high quality academic references.4. Sentences are well constructed; expression and meaning are clear. Basic written language rules are followed. Sentences are free of errors in vocabulary, spelling, grammar, punctuation, and style. Meaning is consistently communicated through a complex use of language. APA 7th referencing style is used correctly for in-text citations. APA 7th referencing style is used correctly for the reference list. In-text citations are correctly formatted and punctuated with no errors. The reference list is correctly formatted and punctuated throughout, with no errors. All cited sources are included in the reference list, and references in the list are referred to in the text.answer according to this use 2019-2024 references

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